BABY MAX UPDATE

BABY MAX UPDATE

I RECEIVED THIS UPDATE ON BABY MAX. 

A Little R&R...Rest and Restraints!

Update from Gina, Max's Mother via our Prayer Warrior Friend Patricia:

Oh my, where do I even begin! The last 72 hours has been an up and down roller coaster ride. Monday, Max was placed on extra sedation and paralytics to keep him calm and still. He was restrained because, well as you all know Max, he was feistier than ever. During the night, he kept waking up and going straight for the ventilator tube. They tied him down for his safety. It made me chuckle and the nurse thought I was crying. I told her I wasn’t surprised! Max is a fighter as we all know. Nothing is going to stop him! He did however continue to scare the daylights out of us. When he starts to wake up, he gets really mad and holds his breath. Everything inside clenches down and Max stops breathing and begins to drop all his stats. The first time he did this, everyone came running and I about fell on the floor. But they have finally figured him out! Max is now off paralytics and as soon as he starts to move a little they just give him a small dose of sedation and it knocks him out again. He is making slow progress but the doctors have informed us that this is going to take time. It is finally confirmed, Max is aspirating. Each time Max is bringing up stomach contents it’s going back into his lungs causing breathing problems as well as damaging lung tissue. The doctors are finally realizing that Max’s retching episodes are creating so many problems for his heart and lungs. They are doing every test you can think of. I wish they would have reacted quicker and maybe that would have prevented it from getting to this point. But I can’t get consumed with that. It is what it is. Everything happens for a reason. Once Max is at a more stable respiratory point, they will begin testing. They will soon wean him off the ventilator but first he needs to cooperate. He needs to just rest and recover and for goodness sakes, without restraints!!

Thing are looking promising.

I promise to post another update tomorrow.  I usually hear from Patricia sometime on Saturday so hopeful we will get great news.  Our prayers are vital to help keep this mother strong, healthy, and hopeful!

Blessings to You All

Coming Next Week:  The Continuing Adventures of Gmama and Sewing Kit, sneak-peek at my RWB creations for blog hop, and another "Mary Story..aka...my mother (1917-2003). 

 For now, I'll refer to stories about Mama, "Mary's Stories". 

 In time I'll ask you, my faithful followers, to help me decide if I should Keep Or Choose another name for "Mary's Stories"

URGENT ...BABY MAX NEEDS OUR PRAYERS ASAP

BABY MAX 

NEEDS OUR PRAYERS!

Patricia just emailed an urgent message concerning our precious Baby Max.  He is the catalyst for Prayer Request Sunday and more like our little mascot for the bond that has grown between those of us who meet each Sunday to report, request and pray over the needs of one another.  

Here are the details in Patricia's own words, (Patricia is a good friend of Baby Max's mother, Gina):

Gmama,
The Baby Max roller coaster ride is in full swing again.   Baby Max had to be rushed by ambulance to the hospital again Father's Day night.  He has started to have retching episodes, like violent dry heaves.  The episodes were getting so frequent that it started to exhaust Baby Max and he started to choke.  He is in the cardiac ICU at Duke on a ventilator.   They have him heavily sedated so he can rest and regain his strength.   Hopefully, the doctors can figure out what is causing all this trouble for Baby Max.  Gina is needing prayers for strength, too.

Thank you for your support and prayers, Gmama.

love,
patricia

Your comments and words of encouragement will be passed on to this exhausted and worried mother.  I love all of you so much for your empathy and willingness to pray for a little Baby boy that we only know as Baby Max.  God formed Max before we ever knew him, knows every breath Max takes, and hears our intercessory prayers for Max.  Won't you please join us in sending prayers and words of encouragement to Gina?  I will contact Patricia and give her your comments to take to Gina!

Blessings

WYATT'S QUILT FINISHED

WYATT'S QUILT

HAS REACHED

IT'S DESIGNATION!

JUNE 15TH, 2012

What began as a donated quilt top of left over scraps from Marlene's Quilt Guild

back in April, 2011, is now a treasured Comfy Quilt for a precious little 10 yr. old boy

battling bone cancer.  I would like to show Wyatt's picture but I don't have his parent's permission so I'll leave the scene up to your imagination.  Once I get permission, I'll post a picture!

The Scene:

Ryan is helping his friend Wyatt hold up the quilt from Wyatt's hospital bed, bald head, face mask to protect from germs.  Actually, Wyatt ( 10 yrs. old) was new to the 4th grade class in January and due to numerous absences while searching for an answer to Wyatt's leg & hip pain, he had not had sufficient time to form any close friendships.  The diagnosis was bone cancer in his pelvis at age 10!!!!!  Their teacher, Mrs. G, reports her amazement for the empathy this class shows for each other so she wasn't at all surprised when Ryan's idea to sign their names on a quilt for Wyatt was met with resounding excitement.

My DIL & Ryan made a road trip to B'ham last Friday to deliver the quilt along with other goodies collected by the class and their parents.  I'll let you imagine the excitement Wyatt felt when Ryan entered the room and gave him the quilt!!  He was so surprised to see Ryan at first and the quilt was an even bigger surprise.  The colors really brightened up Wyatt's drab hospital room!

As mothers/grandmothers, you can well imagine the heartfelt gratitude of that mother who had been cooped up in that hospital for over a month, just to see a friendly face laden with goodies from HOME!!.  Dad and older sister are back at home trying to retain some semblance of a normal life under harrowing circumstances. 

 Can you feel her tears?  

Tears of gratitude, exhaustion, weariness, worry, sadness, and loneliness....

I finished hand quilting at 1:00a.m. Friday morning.  She was popped in the washer and dryer around 1:30. She came out of the dryer around 3:00 all scrunchy, warm, and cuddly!  My fingers were numb but I felt such a need to hand stitch Wyatt's quilt so I could pray while I stitched.  Besides, I am a much better hand quilter than a machine quilter.  My machine quilting still looks like a hot mess in my opinion.  This quilt took me 2 weeks to sandwich together, baste, and hand quilt.  I am so slow but for me that was a record.  This is a full size quilt BTW!!

  

To Marlene's Quilt Guild, 

Thank you so much for donating the quilt top.  Although it didn't go to a tornado victim, I think you will agree with me that Wyatt's Quilt is exactly Where and Who it should be with!

Please join me in praying for Wyatt and his family....a special prayer for strength and encouragement to his mother.  I can assure you we are going to continue to minister to this family to meet their ongoing physical needs.  Our plan is to make sure the house is professionally cleaned in anticipation of Wyatt's homecoming in mid-July and need for a germ free environment.  We will have over 2 weeks of meals scheduled as well as a well stocked pantry now and for when the family is all back home together.  Wyatt will have to return monthly to B'ham for a 3 day treatment which will require gas, meals, parking fees, etc...

Do you know of a family in your area who needs an extra hand?  Perhaps you have your own story of helping.  Why don't you share your story on your blog (if you have one) and tell us you did so.  Then we can hop over to your blog and read all about it.  Sharing our stories of helping gives us all ideas of HOW to help,  allows us the opportunity to exercise intercessory prayer, and encourages ALL of us to

PAY IT FORWARD.  

Blessings

GMAMA JANE

PRS JUNE 17th Fathers Day Edition

PRAYER REQUEST SUNDAY

FATHER'S DAY EDITION

JUNE 17th, 2012

 I pray that today you are spending time with the important fathers and/or father figures in your life.  Forgive me for getting this post up a little late.  I came down with a cold yesterday evening and I went to bed before finishing this post!  I hate summer colds!!

I am waiting for my family to arrive for a backyard cook-out.  Everyone brings their own meat to drill so it doesn't make so much work for me.  I used to do it all but the girls have taken on a lot of the work which makes it much easier on me.  We have the grills hot, the table moved out to the backyard (our patio is too hot mid day) and yard games set up.  The action will soon begin as the Hillis Party of 12 gets together for Father's Day!!

#1 Husband, Daddy, PaPaw is the Star of the Show today!  He's Master Griller while #1 son and #1 Son-in-Law sidewalk supervise his cooking skills.  All three claim to be the best.  Of course #1 SIL was a chef at one time so I'm thinking the crown may go to him but shhhhhh  you didn't hear me say that!!

PRAYER REQUESTS:
JULIE REQUESTS:
Thanks so much to you and the gang for your prayers. Ben has had more tests and the jury is still out but toxoplasma does not seem to be the reason for his seizures. The doctors say that the cysts would have showed up on the scans, and the eye specialist says Ben's eye problems are not the kind caused by that. While this is still an on-going concern, we are all relieved that this cause has been eliminated.

I will be so happy in July to be able to spend some time for a visit and get a first-hand update ... with lots of hugs thrown in.

Blessings, Julie

Miracle Needed:

http://www.with-heart-and-hands.com/2012/05/praying-for-miracle.html

Blog "With Heart and Hands"

BABY MAX:  NEEDS TO GAIN WEIGHT!

Barbara Stanbro: Nancy Schuab From DollQuilt swaps:
Oops, sorry, I made my very first mistake!!  LOL!!  wink wink.  Barbara is not the person recovering...she only relayed the message.  Our prayers are for Nancy Schuab

Is recovering from infection/kneww replacement and hospital stay resulting from precious incomplete treatment of Lyme Disease several years ago.  OT ordered a sewing machine as part of her therapy but it was hard to use another machine other than her own!  Barbara will be coming home soon and will IV antibiotics for at least 3 months.  Let's pray for our fellow quilter to be able to resume her love of sewing while she recovers.  We can all empathize with her in that dept.!!

Julie:

10 yr. old Grandson Ben is still in need of our ongoing prayers!

Happy Father's Day

Gmama Jane

A GOLD STAR JAMES UPDATE

 Cerebral Palsy does NOT define Jame

I wanted to share a picture update and let you celebrate with me all the wonderful progress my Grandson James has made in the past few months.  We measure each milestone in inches rather than miles.  However, Mr. James is showing all of us he is determined to be a typical little pre-school boy with all the joy and enthusiasm that only James can display!

James deserves a Big Gold Star!

Spring 2012 school pictures

Spiderman likes to shop too

James and Daddy play Guitar Hero

James taking Therapeutic Horse Back Riding lessons

He just thinks it's fun!  PaPaw is looking to buy a pony just for James!

James' ability to sit up, keep balanced, and use his arms and hands is major progress!

Oh, the simple movements you and I take for granted!

Here he is standing with walker and balances with left hand while pushing elevator button with right hand!!

I love his Chef's attire...Woodie on the Patootie

underwear which means James is 95% potty trained during the day!!

Think about how difficult it would be to potty train a child that can't walk or stand independently!

It's a work-out for me to try and hold him up while pulling his undies up & down.  He can hold on to the sink nowadays with pretty good success while his underwear is maneuvered.  He's telling us he has to go potty...whoop whoop!!!

James is in the green trunks.  Can you tell who the child is with CP???

He looks like all the other little boys in the pool!

Blow bubbles James!!  Good Job!

James requested I take his picture from this angle!

I had parked myself in the shade...thank you very much!

This gal doesn't sit in the sun!

Ice Cream makes any day brighter especially for little boys.

Sprinkles Please!

This is a picture of James' awesome parents; who move heaven and earth every day making sure James has every advantage possible in their goal of giving James a life well loved! 

After-all, isn't that what we all want in the end?

Blessings

GMAMA AND SEWING KIT

GMAMA AND SEWING KIT

After she found out I had a Blogging nickname, little Miss Sassy pants decided she needed her own nickname for when she was referred to in my blog, of course!!  

Sew... SEWING KIT it is!

She spent the entire day with me in the Sewing Cave working on a Pillowcase for PaPaw on Father's Day as well as some needlecases.

We found these on PINTEREST and Sewing KIT made 2 before the afternoon was over.

SK and I Googled "Hot Dog Pillowcase Video" 

There are a TON of options but I like this 

PDF COPY from SEWHOOKED

Here are some written directions from another site that we liked.  I didn't want to repeat the "name" of the website to 7 yr. old Sewing Kit but you can handle it:

Hot Dog Pillowcase Directions

STEP 1

STEP 2

STEP 3

The two of us are sort of like the Blind leading the blind.

Somehow we sewed the cuff on the short end of the hot dog and 

well...you can guess the rest...our hot dog looked more like a half eaten bologna sandwich!

We laughed so hard that it was almost worth the *hot mess* of a pillowcase project...

Let's just say, no one will be having sweet dreams tonight on any pillowcase made by 

Gmama and Sewing Kit!

RULE 1 in sewing:

 If Plan A goes awry...

immediately go to

Plan B

Can I Say Heaven in a Cone?

Blessings

and 

Sewing Kit   

(I think she needs her own logo)

Prayer Request Sunday June 10th 2012

PRAYER REQUEST SUNDAY

JUNE 10th, 2012

Measuring My Spiritual Growth

Am I more like Christ this week than I was last week?

Am I serving God more this week than I was last week in my church?  at home?  with my family members?

Am I more loving this week than I was last week to people with whom I disagree?

Am I more willing this week than I was last week to stand up for God's principles as revealed in His Word?

What other questions would help you and I measure our spiritual growth?

PRAYER REQUESTS:

Gloria requests:

"Could you please add to your prayer chain a request for our family? My brother, Mark, has pancreatic cancer that has spread to his liver. And, now we also just found out my mom had a breast lump removed, and it did come back cancerous. My sister (from Ohio), and I (I'm in Calif) are traveling there soon (to Utah) to see her. She has a return doctor's appt before we arrive to see what their plan of action is. I would really be grateful for all of the prayers. Thank you so much for praying!" 

Jannette requests:

Jannette lost her precious Mother within the last few weeks.  We have been praying for Jannette's mother for quite awhile.  Our prayers have been answered on the other side of Glory.  Jannette is at peace that her mother is in heaven...free of pain and any health problems.  We all rejoice for the *Going Home* of God's child.  Our sympathy and love go out to you for the loss of your mother, Jannette!  May God's peace that passes all understanding be with you in the coming weeks and months.  You will never stop missing her but you will learn to think of your mother with more smiles than tears in time.

Blessings to you my prayer warrior friends.  I pray for you to grow in your spiritual walk this week and for travel mercies for those of you traveling or away from home.

I treasure our friendship and the time you take from your day to read my blog!

BLESSINGS

GMAMA JANE

SUMMER HAPPENINGS

SUMMER IS HERE!

My Granddaughter made this little Potato Head*vignette* of her PaPaw, Grandmama, and little brother, Sidekick Scott.  I thought it was hilarious and had to share it with all of you.  

Well...Summer 2012 is here!  What are your plans? 

I've already been busy with an early garden bounty, end of school year programs, and the annual week of Vacation Bible School.   AMAZING WONDERS is this years Theme!

 I assume that most of you know about VBS but for those who may not take part in this summer ritual:  VBS is like Bible Boot Camp for kids!  Most of the time it lasts an entire week. Our church schedules VBS the week after school is out...before family vacations begin taking folks to the beaches and to the mountains.  The children hear Bible stories, sing lots of upbeat songs, play games, make awesome crafts and enjoy snack time.  I was in charge of the Kitchen Brigade and we served, trailmix, nachos, hot dogs, cookies, and ice cream.

My Squash and Zucchini is procreating like rabbits!  I made a great squash/zucchini casserole that even the grandpeeps loved

SQUASH ZUCCHINI CASSEROLE

yellow squash

zucchini 

1 sweet vidalia onion

salt & pepper

1 can Cream of Mushroom soup

1 can Cream of Celery soup

Sour Cream approx. 1/2 cup

1-2 eggs

Shredded Cheese (your choice, I use Three Cheese Blend)

crackers for topping (Ritz, Town House)

1 stick butter/margarine

Boil your squash and onion till fork done.  Salt & Pepper to taste.  Mix eggs, sour cream, soup, and enough milk to make mixture creamy.  Fold in your cheese (reserve some for your topping) and pour into buttered or greased casserole dish.  The amount of squash you use will determine the size casserole dish.  Now melt butter and pour over crushed crackers till crumbly.  Sprinkle over casserole along with reserved shredded cheese.  Bake at 350 till set, approx. 30-40 min.

  I typically serve this dish as a side with a meat entree except for last week  when #1 Husband and I ate ONLY squash casserole with a side salad and fresh strawberries for dessert.  We didn't miss the meat at all...we eat MUCH less meat when the weather warms.  Most of our meat is grilled during the summer months.

I have a stitching play-date coming up with a good friend and old teaching colleague who retired with me in Dec. 08!!  She just bought a brand new Bernina quilting/embroidery 830 machine.  She has invited me over for a test drive....oooh, ahhhh, squeal like a little girl................I'm so excited!!!  I LOVE you Celina!!

What are you doing this summer? 

 or Winter 

for my Aussie and New Zealand friends.

I've got several swaps and projects coming due on a fast approaching timeline.

I'll get some pictures up ASAP!!

Reminder:

Names for Prayer Request Sunday.  

Jannette lost her mother so be sure to stop by and read Jannette's note to all of us.

Blessings

GMAMA'S BRAG POST

IF A GRANDMAMA CAN'T BRAG TO HER BLOGGING FRIENDS, THEN WHO CAN SHE BRAG TO??

Let's just all agree to OOH and AAHHH over each other's Child/Grandchild pictures!

Besides, quilting and sewing, what else do we have to brag about?

THE CUTEST LITTLE PRE-SCHOOLERS IN MY WORLD!

James actually sang, clapped, smiled, and didn't cry once during the entire program!

SUCCESS!!

Sidekick Scott was giving his cousin a pat on the back

(when I'm not looking Scott is known to give a little "push" now and then...jealous!)

Getting ready for the BIG SHOW

Mrs. Christine, James' #1 Aide

 Emma Grace Straight A Honor Roll...1st Grade

(middle)

 Clay, 2nd grade A Honor Roll

striped shirt

Ryan, 4th grade, Citizenship Award, A-B Honor Roll

pink shirt/glasses

(He wants you to know his only C was the first 9 weeks in Math and he brought it up to an A)

All FIVE spent the night last Friday Night for a BIG GRANDPEEP SLEEP-OVER

PaPaw and Grandmama needed a nap the next day but the Grandpeeps had a fabulous time.

Pizza, 2 movies, Candyland, Ice Cream, & Popcorn


Thank you for indulging this Grandmama!
Afterall, the effort I put into helping these 5 precious children grow up to be happy, healthy, productive, kind, compassionate adults is all that will remain for eternity!


Blessings

OUCH! OUCH!! RED ANT ALERT!!

DO NOT WEAR FLIP FLOPS 

When Photographing your NEXT quilt if it's next to a vegetable garden 

with a HUGE Red Ant Hill in your path!

This post was originally inspired by an act of kindness from my 4th grade Grandson, Ryan. I'll get to that later! 

In the process of photographing this quilt, I stepped on top of a HUGE red ant hill.  My foot sunk into the soft dirt while the ants immediately began to bite and sting. I felt as though I were in quick sand...my foot wouldn't move fast enough nor could I get the ants off my foot.  I began  running towards my house, up the stairs, and into the bathtub to wash the ants off and apply first aid spray. 

 Great plan... IF I could find the first aid spray!!!  Have I told you how BADLY it feels to be bitten/stung by  red ants ???  I am running hither and fro looking for SOMETHING...ANYTHING to numb the pain!!  After the LONGEST 20 minutes of my life, I find some CVS brand first aid spray with numbing medicine as well as antihistamine properties.  I also popped a Benadryl tablet.  But the ONE treatment that worked the best was an ice pack intended for my broken ankle of last fall.  AAHHH!!!  RELIEF!!!!!!

Now for the REAL STORY....

 Ryan's class has a fellow classmate with cancer who is beginning chemo treatments in the next few weeks.  Wyatt must remain in the hospital for several months.  It was Ryan's idea for the class to sign a quilt and take it to Wyatt as a gift and reminder of how much his friends and teachers are thinking of him.  Even though the class can't be there in person during Wyatt's treatments, he can wrap up in this quilt full of love and Get Well wishes.  I just happened to have a quilt top given to me by my blogging friend, Marlene's quilt guild last April when I was collecting quilts for Tornado Babies.  I was very select about who got the quilts and this particular quilt just never found the right home...till now.

I think Marlene's Guild will be pleased to know their quilt scraps are going to make a little 10 yr. old boy feel very loved in the next few months.

I had a feeling this quilt was intended for a special recipient 

and

I was right!

God go with you precious Wyatt.  May His healing hand be upon you and when you wrap yourself in your new quilt, may you feel all the love, get well wishes, and prayers stitched into and written upon this special quilt...

WYATT'S QUILT

Prayer Request Sunday May 20th, 2012

PRAYER REQUEST SUNDAY

BABY MAX

MAY 20th, 2012

Prayer Warriors

Our little Baby Max needs us once again.

I have cut and pasted the note Patricia received from Max's mother.

The effective, fervent prayer of a righteous man avails much"  James 5:16

"And whatever you ask in My name (consistent with everything I have taught you), that, I will do, that the Father may be glorified in the Son"  John 14:13

PATRICIA/BABY MAX

Can we put Max back on the prayer warrior list please?  I received the following from Gina:

Well, well, well where do I begin. Let's start with the good. We moved into our new house this weekend. It's amazing. I finally have my dream kitchen! I also had a wonderful first Mother's day, a day I've been waiting to celebrate for years. Maxi man is now weighing in at 10 pounds 12 ounces. Now the bad, Max was admitted to the hospital Tuesday night! Yep, that's right we are back in cardiac ICU at Duke. For the past couple of weeks, Max has been dry heaving and gagging throughout the day and night. He stopped taking a bottle completely and was only getting his feeds through his tube. He started spitting up a few days ago and on Tuesday he had some small specks of blood. I immediately called the doctors in Boston and they thought it was pretty normal since Max has been dry heaving so often. Well, as the day went on, Max was realy not feeling well. His coloring was off and my instincts told me something was wrong. He started to throw up a very disturbing purple and it had blood in it. We took him to the ER at Duke and he was admitted. They did an ECHO right away which looked good. There is now blood in his stool and blood in his stomach. He received a blood transfusion tonight. He is also requiring oxygen at a very large amount. They are confused and concerned with the need for oxygen because his heart and lungs look good. They are leaning towards some kind of infection. He is being tested for everything. Tonight he had a fever of 103. They gave him tylenol through his IV and it went down to 98 within a couple of hours. Tomorrow he is scheduled for a cath to check his pulmonary veins. During this time, the GI team is going to put a scope down his throat to find out what is going on. One of the side effects in 8% of the children on Gleevec is a GI bleed. We are hoping this is not the case. They tried to feed Max tonight through his G tube and as soon as the milk went in his tummy, he went crazy and screaming bloody murder. He is definitely letting everyone know something is really wrong. We are hoping it will be found and fixed. I kinda feel like nothing is ever simple with Max. For once, I just want them to say "here is the problem and here is the solution." Just a simple black and white issue. Max is always is the gray area.
The ugly...Poor Max is just miserable. He won't give us a smile and just looks so sad. I just want them to fix my baby boy so he can begin to enjoy eating. And he can't afford to lose any weight. He is so close to doubling his birth weight by his 6 month check up next week. Please continue to pray for Max and that this is just another bump in the road that we will get through. I will update everyone tomorrow evening with the findings.

JULIE/BEN
Julie informs me that her grandson Ben has had more seizures.  The doctors can not find a cause for 10 yr. old Ben who was born blind.  However, Julie's husband has been doing some research (as we grandparents are known to do when the health and well being of our grandchildren are at stake) and he suspects Ben has a condition due to a parasite in uncooked meat that is specific to Korea. Ben was born in Korea which makes this a very plausible explanation for the seizures. Julie and Ben need our prayers. 





Thank you prayers warriors. God hears our prayers. have a wonderful week.


Blessings,
Gmamma Jane


P.S. Having some computer issues. Blog post may be a little scarce this week.