Tonight while taking his bath, James asked his mother a question she has been dreading. James
stops playing, looks dead pan into his mother's face and asks, "Mama, why do I have *the palsy* (his name for CP)? My daughter, holds her breath and begins to share with James what "the palsy" means, but before she gets more than 1 sentence out, James interrupts to ask, "Do any of my friends have "the palsy"?...Mother, "Well, 1-2 of your friends have Cerebral Palsy but none of your friends at school have CP." And just as deadpan as he could be, he says,
"Oh?! (said as though he has had an Ah Hah, Lightbulb moment)
Is *the palsy* why I'm so AWESOME ?"
I GUESS, IT'S ALL IN HOW YOU LOOK AT A SITUATION!
YOU CAN EITHER BE A GLASS HALF EMPTY OR A GLASS HALF FULL
KIND OF PERSON.
PERSONALLY, I LIKE JAMES'S PHILOSOPHY BEST! HE MAY JUST BE THE WISEST LITTLE FELLA I KNOW!
was born 8 weeks premature
with a Grade 3 Brain Bleed
This is his MRI
JAMES IN NICU...OCT. 7, 2007
JAMES AND HIS FIRST WHEELS
SPACE PROGRAM TO GIVE SPATIAL
ORIENTATION TO CP CHILDREN
JAMES GROOMING HIS HORSE PRINCESS
SCHOOL PICTURES 2012
JAMES BEING INTERVIEWED ON LOCAL TV
JAMES AND HIS FAKE BLACK-EYE
JAMES READING WITH SANTA
JAMES AND MOMMY
DADDY, MOMMY, AND JAMES
Today, James is enrolled in a typical Kindergarten class with an aide to help him maneuver from place to place. In the classroom he uses a walker or canes along with the braces he wears on his legs and feet.
Academically, James is right on grade level and somewhat above with his reading. He uses a device called an alphasmart to take spelling tests by using a keyboard. This device is needed since his lack of motor control over his arms and hands prevents him from holding a pencil. Next year he will receive an IPad for written work. Recently, another MRI was done to rule out any anomalies that would explain his nocturnal seizures. Nothing had changed since the one you see at the top of this post. However, within the last month, James has had a few peti mal seizures at school. Medications have improved his concentration but further adjustment is needed to control the seizures. Given all his physical disabilities, James is a delightfully funny, articulate, little 6 yr. old boy who loves people, his music, his dog Neela, his cat Flower, and just happens to think of himself as AWESOME.
My Grandmama Prayer for James is to always believe in himself while having empathy for others.
I would say that is a Glass Half Full Philosophy!