Indulge me today while I tell you about my Sweet Baby James
and the Blessing he has been to our entire family
Meet James Patrick age 3
Born 2 months premature
MY WORD for 2011 had to find me...I couldn't settle on a word and in the meantime I pondered for days about the WORD I would choose that best represented my sentiments for 2011. I began to ponder on my favorite verse from Jeremiah 29:11 NIV which says:
"For I know the Plans I have for you",
declares the Lord.
"Plans to prosper you, and Not to Harm YOU,
Plans to Give YOU a HOPE and a FUTURE."
Having gone through spinal surgery, spinal rhizotomy, with James back in June at St. Louis Children's Hospital
combined with the HOPES & Dreams I have for all FIVE of my Grandchildren...
|18 months First time sitting upright independently!! He's hanging on to that bucket for dear life!|
HOPE FOUND ME.
Perhaps some or even just ONE fo you have or know of a young child with Cerebral Palsy. I encourage you to GOOGLE this surgery and St. Louis Children's Hospital, Dr. Parks. (if I knew how to make a link, I would do it right here, but I don't, so bear with me). It offers life changing HOPE for children with CP. MY daughter was not told of this surgery by any of the many medical doctors treating James. She happened upon a story on NBC about SDR surgery and Dr. Parks at SLCH. Well, immediately she began almost a year long process of research, decisions, Dr. visits, and a consultation in St. Louis to determine IF James was even a candidate for SDR surgery. In March of 2010, Dr. Parks, gave his medical opinion that James was an excellent candidate and surgery was scheduled for June 10, 2010.
Children from all over the world come to St. Louis to have SDR surgery and we met so many wonderful parents of children with all different medical diagnosis and prognosis. The Ronald McDonald ROOM INSIDE the hospital was like a home away from home with computers, large eat in kitchen, living room with huge couches, recliners, Big screen TV, free laundry room and fully stocked bathrooms. I now make sure I put my change in those little collection boxes in every McDonald's restaurant because not only did we use the RMcDRoom but my daughter & James also stayed 3 weeks in a RMcD House in Birmingham for a Post Surgery Physical Therapy Camp back in August. I can't say enough WONDERFUL things about them!!
The Journey to Independent Walking will be Long. But with surgery and intensive therapy, Dr. Parks believes that James will either walk independently at best or with canes at the worst. Our HOPE for James is a VERTICAL LIFE!!
Here are some pictures of James and why he INSPIRES HOPE...HOPE not only will he walk but HOPE James will be a successful adult with Faith, Empathy, Courage, Determination, Perseverance, and Sense of Humor. You will see these characteristics displayed in the following pictures:
Water Therapy has made a HUGE Improvement
|Learning to Feed Himself is messy business just like for any child|
James is a PUPPY for Halloween! He insisted it was PUPPY not DOG
Cousin Scott is trying to "help" James with his new walker
Auntie LaLa (aka.Anna Laura, my youngest daughter) ADORES James and likes to have him spend the night with her whenever his Mommie will let him!
James all dressed up for his first day of Pre-School, T-Th
School has brought a HUGE helping of HOPE in social skills!
Doesn't he just look like the cutest little man you've ever seen?!
A Special Bike made exclusively for James. He was on a Year long waiting list and it came at just the right time. God is So Good!! Look at that smile!!
James was so excited to meet another person in a wheelchair like him! This was one of the ParaOlympic Athletes and he was so sweet to James
James is "propped" up by Frosty on Christmas Day
|Gran Sarah reading to Scott & James. My sister is like another Grandmother!|
Christmas 2007-James' 1st Christmas BEFORE we knew about the CP diagnosis.
Great Grandmother, "MaMaw" and all her "Greats" I LOVE this picture and we are lucky to still be making this picture every year
Christmas 2010-James 3 yrs. old
The Vintage ABC Quilt I made before James was born. I've got to make him a Big Boy Quilt ASAP.
I need to have made all 5 Grandchildren a quilt before I make a second. I have 2 more to go.